Lizzie insisting on wearing her white "flower girl" shoes with her PJHi everyone, we brought Lizzie for her appointment with the cardiologist on Monday (24 May) and it was a bitter-sweet visit for us. We are so relieved and happy to hear that the cardiologist is still comfortable with her oxygen level, albeit lower. He thinks that she is not in desperate need of a surgery in the short term. However, he wants to do an invasive procedure on Lizzie sometime this year to assess the conditions of the 2 shunts (tubes from the previous surgeries) supporting her blood flow to the heart.
We were also told that while the major surgery that Lizzie has to go through in the medium term will correct her missing-artery issue, there are cases where the donor artery may only last 5 years (we were previously told that it lasts for 10 to 15 years). When that happens, Lizzie will be back on the operating table. That is a great blow to what we are already preparing ourselves to accept for Lizzie's life.
To us, the stake has just been raised. High-risk open-heart surgeries for the rest of her life every 5 to 10 years!! This thought brought us down on our knees, begging God for mercy and a much-needed miracle for Lizzie.
While we pray fervently and unceasingly for her well-being, we treasure our moments with Lizzie. We do what we can to let her lead a fulfilling and God-honouring life. Lizzie is looking forward to being a flower-girl for the first time on 31 May. She takes her practice very seriously.
Never thought I have to deal with a boy dragging my daughter down the aisle so soon!!!
Lizzie and the terrapins
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