Our brave girl, Elizabeth: Update - 20 May 2010: A time of waiting

Thursday, 20 May 2010

Update - 20 May 2010: A time of waiting

Dear friends, thank you for the many encouraging messages and prayers for Lizzie. We treasure each and every one of them.

Playing dress up

Lizzie's oxygen level is still pretty much a roller coaster ride with good times of 80+% and bad times of 50+%. We pray for God's grace to be with her especially during times of de-saturation so that nothing drastic will happen. This is a time of waiting, and of prayer, as we look towards her appointment with the cardiologist next week.

Apprentice chef

Lizzie continues her daily activities, oblivious of her condition. It breaks our hearts to think about what may possibly come her way. Whatever she has to go through, we will be right by her side. We pray that you will help us pray for her too.

No comments:

Post a Comment

About This Blog

This blog is about our baby girl Lizzie, who was born on 9th August 2006 with 22q11.2 deletion syndrome, a rare chromosome defect also known as DiGeorges Syndrome. This resulted in calcium deficiency and severe cyanotic congenital heart defects called Taussig-Bing anomaly (ventricular septal defect and double outlet right ventricle with pulmonary artery atresia). She underwent surgery on the 25th September 2006 to place a Blalock-Taussig Shunt on her right side. Lizzie spent two months in the ICU, and went through months of intensive physiotherapy. On 18th January 2008, Lizzie had a second surgery for a BT Shunt, this time on the left side. By God's grace she recovered quickly, and was discharged after only four days. Despite all odds, Lizzie has continued to thrive and grow, in strength and character day by day.

Now as the doctors are planning for major open heart corrective surgery, we continue to pray for Lizzie's healing, for strength, and protection, as we trust in God's will.

We first started a yahoogroup back in April 2006, when we first received the diagnosis of our (then unborn) baby's defects. We decided to share our testimony online, with not only our friends and family, but also to be an encouragement to others who may be going through the same situation.
We believe in the power of prayer, and in miraculous healing.
Lizzie has come a long way, and has defied the expectations of doctors and specialists.
We thank God for her, she has been a blessing and a constant joy to us - she is our little miracle.
Our prayer is that, through our testimony, others will not only be encouraged and comforted, but also come to know the Lord Jesus Christ, and find hope in Him too.

To God be the Glory.